7th Annual New Orleans Myasthenia Gravis Walk
March 6, 2018 KWBBRH
This weekend, administrative assistant Whitney Santora and her husband, Tommy, coordinated the 7th Annual New Orleans Myasthenia Gravis Walk that took place in Lafreniere Park, Metairie, LA. There were 1 mile and 3 mile walks to raise awareness and donations for “finding a cure for myasthenia gravis, improving treatment options and providing information and support through research, education, community programs, and advocacy through the national Myasthenia Gravis Foundation of America (MGFA) office.”
Congratulations to Whitney and Tommy!
The Santoras founded the New Orleans Resource Group branch of the MGFA in August 2011 and have coordinated the walk yearly ever since. This year the walk raised approximately $26,000.00, and the past seven local walks have raised over $275,000.00 total.
Myasthenia gravis can affect all ages, races and genders, and more than 100,000 individuals nationally are diagnosed with the chronic, autoimmune, neuromuscular disorder. It is characterized by fluctuating weakness of the voluntary muscle groups and can affect muscles that control eye movements, eyelids, chewing, swallowing, breathing, coughing and facial expression, as well as, the arms and legs.